Dr. Kaplan - My Favorite Snappy Happy Plastic Surgeon

This morning I had an appointment with Dr. Kaplan, my plastic surgeon who was in on the surgery and was in charge of my arm an the skin graft and such. And apparently he is the official photographer as well. Since my first visit before the surgery, Dr. Kaplan has always taken pictures of my tongue (to show the progression) and my arm. Well apparently he also took pictures during my surgery and....wait for it....I GOT TO SEE THEM TODAY at my appointment. That's right, I saw pictures of my neck dissection with my skin pulled up over my face - and Warner did too. Warner had been saying he was going to ask if there was a video of my surgery (which there is not) so I guess this was the second best thing. He showed us all the vessels and stuff and then he showed us a picture after they connected the flap to the vessels down in my neck. Then he showed us another picture of my tongue right as the surgery ended. I looked rough! I was super duper swollen and had some blood on me. Also, instead of a trach in my neck in the pictures it was just a tube that I'm sure was connected to a ventilator or something. I have come a LONG way since then and that's why he showed us the pictures - so we could see how much progress I've made. So, if you're wondering why my surgery took 14 1/2 hours it's probably because Dr. Kaplan stopped every 5 minutes to take pictures (HA, just kidding). He took pictures of my tongue and my arm today in his photo studio - yeah, he has a photo studio set up in his office because he takes a lot of before and after pictures of people that come through and have work done. So, that's my big news today! I don't have to go back to see Dr. Kaplan anymore, unless I want to see the pictures from my surgery again I guess!!! 

I also had Dr. Kaplan look at my PEG tube to see if I needed to have the Gastro doctor check it out. It's been kinda swollen and around it and I think it's infected or not in the right spot anymore and it's kind of oozy (it always has been but it's different now). So, he is ordering a Cat scan to check it out to make sure it's nothing serious - but he thought it looked good compared to some people and it didn't look infected to him. I think they should just pull it out. I started taking all my meds today by mouth - my vitamin is going to kill me (it's liquid and tastes like well, it tastes gross, I don't know how to describe it). So, I'm not using my feeding tube at all at the moment - as long as I keep eating as much as I can. So far today I've had peaches, yogurt, pudding, and some soup that didn't taste very good so I didn't eat much, and some juice. I might have some eggs in a little bit. I'm just eating small meals more often for now. When I first started I never got hungry because I was doing the feeding pump as well but now that I've stopped using it, I actually get hungry, but I haven't started craving any foods (except sweets which I can't taste) so it's hard to figure out what to eat. 

Okay, I think I need a short nap / a really long one. I start back to physical therapy tomorrow afternoon so I need to rest up for that! 

Quick Update

Well, I got scoped today...TWICE. Dr. Pou had a little bit of sympathy when I told her I was going to see Dr. Fields after my appointment with her and that he would probably scope me then, but she didn't have enough sympathy to not scope me. She's brutal. Dr. Fields asked who was better at scoping and I told him he was, Dr. Pou is just not very gentle with the scope. Either way it's not very pleasant. So, my doctors all said I looked good and my PET scan will be sometime in October. 

Today I tried drinking my formula junk instead of using the pump, but I had to start back on the pump this afternoon. My stomach is not used to having any significant amounts of food in it at one time and after drinking one can, I was full for a few hours (I still am), and the taste, OH the taste, was AWFUL! So, I'm going to have to skip this liquid stage and go straight to the solids as best I can. 

So that's all for now...maybe Warner will update at some point. I'm going to go watch the women's gymnastics that I recorded last night!

It's Been A Few Days

Hmm...let's see. I haven't updated in a few days and well, honestly, once again not much has happened, I'm just trying to heal. I had two doctor's appointments on Monday - Dr. Bienvenu (chemo) and Mell (speech). Both went really well. My blood counts are on their way back up which is good because I want to be able to do things if they come up without having to worry about getting sick or getting an infection from a lack of white blood cells. I missed out on the hot air balloon races this past weekend because I didn't want to risk being in a crowd. Anyway. I didn't do much at speech because of my mouth ulcers (I still have one or two of them) so Mell didn't want to push me too hard. I'm able to drink juice now without it burning my mouth, although chocolate soy milk doesn't taste so good and it kind of burned my throat. So I'm hoping soon I'll be off the feeding pump and able to just take everything by mouth. 

I have two more doctor's appointments tomorrow (Wednesday) with my wonderful high heeled ENT, Dr. Pou, and my gloom and doom radiation oncologist, Dr. Fields. I'm looking forward to them because I feel like I'm way ahead on healing but part of me also knows that I could get scoped twice in one day and I'm freaking out about that. Dr. Pou didn't scope me last time so part of me thinks she will this time - that or she'll gag me to death with the little mirrors. Dr. Fields will probably scope me because he hasn't done so in a few weeks - and the last time he did so, the scope gagged me. So, I guess I will just have to have a trash can near by. 

Today is my mom's birthday and we went and saw Mama Mia at the theater. It was really good. My brother is up here hanging out and they all ate a good dinner - at least it smelled really good and they are going to have cheesecake for dessert. I will sit here and nurse my mouth ulcers and dream about eating again soon! 

Okay, there's not much more to report for now. We've been watching a lot of the Olympics. I'm just sad the gymnastics is on so late at night - I go to bed much earlier! Oh well! Hope everyone is having a good week!

My First Full Week With No Tomo!

Today, it has officially been ONE week since treatment ended! One whole week! I've noticed a few slight changes. First off, I drank some tea today! Woohoo! It doesn't burn too bad, but I have so much mucus in my throat that when I drink the tea it makes me cough up more mucus, so I'm hoping there's an end in sight to the mucus problem. I want to drink my tea without worrying about how much mucus it's going to bring up. Also, I've only had two major loogies today. It used to be that I had one every couple of hours. I'm hoping this means my throat is healing up. My mouth sores are still there, and when my pain pills are wearing off, I definitely know they are there (especially the new one at the back of my throat) but they are not as bad as they have been. My neck has shown a lot of improvement. It is still red, but it is not as large an area as it used to be. Also, it used to all be cracked and oozing, but now it's just scabby in a few places. Here are some pictures:

I still have some swelling above my scar. 

I'm hoping I can start massaging it again when those sores go away!

 My brother was taking pictures of me 

and I can't smile very well yet so they kept turning out horrible. 

This is take three. This is my frustrated look 

because he kept snapping pictures and cracking up laughing.

So, I'm getting there. Even though I'm not coughing up huge loogies as often, I'm still coughing up a little at a time. Also, the past two nights I've slept really well so yesterday and today I managed to get out of bed and stay up all day! Oh well. I have no big plans for the weekend. I was going to go watch the hot air balloons on Saturday with my brother but with my white blood cell counts low, I think I better stay away from crowds for now. I think we're going to try and catch the ones in Natchez in October. It won't be as hot then either! My mom has the dogs until Saturday because I feel bad for them sleeping all day with me. I don't have any problems taking them out, I just can't get down and play with them very well because of my feeding pump - we almost had major drama yesterday, Edgar ran through my cord and pulled the tape off my stomach but I stopped him in time before he pulled it out of my belly. He just pulled the cord out of the pump and made it go off so crisis averted. So, she's taking them for two days so they can go insane in her backyard and come back and sleep at home. 

OH! another funny dog story. The other morning when Warner left for work, he closed off the other bedroom and bathroom because Edgar had pooped in there. While laying in bed, I counted SIX times that Edgar ran into the closed doors trying to get in to run around the circle (they run through the bed room the bathroom and the living room when they are playing). SIX TIMES!! The poor thing just didn't get it! HA!

I Am Up Out Of Bed

And on the couch watching tv. After two days spent in bed sleeping (and throwing up yesterday) I decided it would be best to get up and actually do something, even if that something was just watch tv. I'm still really tired today, and could probably sleep almost all day today, but I'm not going to. I discovered when I sleep during the day (I have to sleep sitting upright because I'm still on the feeding pump - but only during the day) that it makes my mucus worse. I slept really good last night, only waking up once at 3:30am when it was time for more meds and then again when Warner was going to work and was giving me more meds! So I don't have much to report. I still have all my mouth sores and I'm hoping they are better soon. My cheeks are swollen around my bottom jaw because most of my mouth ulcers are along the outsides of my lower gums. I really want to start eating by mouth soon - I'm hoping I can still taste - I don't know since I haven't eaten anything in a little over a week but I really want some apple juice!! Maybe I'll be brave by the weekend and try something. Oh well, time for another movie, maybe I should think about taking a shower sometime today...

With Dogs Like Ours, Who Needs Kids

Our mutts are insane. I think they will probably tear up all the grass in our back yard when we get back to Tulsa and they get to run around outside. I'm surprised they haven't already worn a track in the apartment carpet. They have taken more advantage of having a two bedroom than anyone else, they spend most of their time running a circle through the living room, 2nd bedroom, and bathroom. Edgar is also big ol' clumsy gorilla. seriously he runs into everything with is tail and his hind end, and hasn't figured out he needs to start stopping BEFORE he gets to the wall/door/kennel/whatever else he's running towards. He has also started learning not to play while on the leash, so as soon as I take off both their leashes he jumps on top of Ruekie.

In other news Stephanie's white blood cell counts have been a little low the past couple of weeks, not so low that anyone is worried yet, but low enough for them to remind us to call if she has a fever. We have also had a different Medical Oncologist the past couple of weeks, she's been very nice, and like Dr. Bienvenu is ready and willing to write whatever prescription we need. It must be something the teach at that practice. Stephanie is also a little anemic which explains why she has seldom ventured from bed the past couple of days. She looks pretty pathetic most of the time, and Dr. Pou says I'm the one with puppy dog eyes!

I Am Worn Out

Yesterday, my mom, my brother, and I went shopping at Best Buy, Gap, Nine West, and Cabelas. I bought Warner a couple XBox games and a movie for his anniversary present (it doesn't even begin to compare to mine, but he was excited) and I bought a mouse for my mac. Gap was having a sale so I bought a cute little black dress and a tank top. Nine West let me down and didn't have anything; Cabelas however, delivered. I went to look at their selection of Keens (shoes) and they were running a sale on them! So, these shoes are usually 90 bucks and they were on sale for 60 and then they were on sale on top of that for an additional 25% off. ALSO, I did not have to pay state taxes on any of my purchases (just local). So, it was a successful shopping day!

Today, these crazy people showed up:

They are my first cousins once removed / Todd is my mom's cousin. Todd and Julie flew in from Dallas and are spending the night at my parents house. They came and spent the afternoon with Warner and I and we all went to Cabelas. We did a little bit of shopping  but mostly we walked around looking at the animals for this kiddo: 

When we got back Todd and Julie played some Guitar Hero with us and we all took some pictures together:

My smile still has not figured itself out. It's pretty pathetic looking. And here's a picture of my parents with Todd and Julie:

And just because she's so cute, here's another picture of Christina:

THEN, as they were leaving, my parents told me to go into the guest bedroom because they got me something. Here's the something they got me:

A sweet action telescope for finishing treatment!!!! I'm super excited about it and I'm racking my brain for the first place I want to use it! 

In other news, my mouth sores are multiplying (I woke up with two more this morning) and the mucus is still being produced at full capacity. I've started taking morphine for the ulcers and I'm hoping they go away soon because they are killing me ad I really want to eat and drink through my mouth again! I guess that's all I got! I hope everyone is having a great weekend!!!