Sunday, September 14, 2008

Tomorrow!

At this point tomorrow I will be tube-less for the first time since May 19th, when I had the three drainage tubes in my neck and my trach. My feeding tube was put in my stomach a few days later although I don't know really when because I was quite drugged up - I had a naso. tube before that and man was that uncomfortable! So, tomorrow I will bid my feeding tube good riddance and be done with it! 


I've gotten to the point where I am eating well enough that I can actually look at recipes and plan out meals to eat during the week. When I was on the feeding tube and not eating by mouth at all, except for maybe a few spoonfuls of soup or some baby food (both of which I have no desire what.so.ever. to eat any time soon), it drove me insane when people would talk about food. Another problem I had was right after I stopped using the feeding tube absolutely nothing sounded good. It's not that food tasted bad I just hadn't had it in so long that I sort of stopped craving things (not so anymore though, I eat like crazy!). Also I had those ulcers that would pop up and be painful so that ruined the whole eating experience - it was more work than it was enjoyable (they are going away now for the most part, I only get them occasionally and they don't hurt nearly as bad). Last week was the first time since May that I actually pulled out a few recipes to make for dinners (we mostly ate out while we were in Tulsa, okay we really just only ate out while we were in Tulsa. I had to put on weight okay???). I would eat frozen meals or meals that didn't require much thought (I would go to the store without a shopping list and basically buy whatever I thought looked good), I did make fish one night a couple of weeks ago, but I just made that recipe up, so it doesn't count! So this week I am trying a new lasagna recipe (because Warner really likes lasagna and I don't make it very often) and I also found a shepherd's pie recipe that looked really good so I might attempt that as well. 

Warner and I made it out to church this morning in Luling. It was fun to see everyone! I made soup for dinner at my parents house for me, Warner, and my brother (my parents are in Yellowstone!) on Saturday night. We spent Saturday evening over at Dawn's house hanging out with her and the kiddos and ate some cake (I haven't really had much cake since my surgery so it was really good!). This morning at church Dawn told me about this conversation that she had with her son Mason, who apparently likes me, but hardly ever talks to me and gets really shy around me (he's 4 right? or almost 4?). So anyway, the following took place during the "Say Hello To Someone" portion of the service:

Mason: Mom, there's Stephanie!
Dawn: Yeah, that is Stephanie, go say hi to her.
Mason: No, tell her to come say hi to me!
Dawn: No...you go say hi to her.
Mason: No, that's okay, I saw her last night!

Too cute! I used to babysit his older sister, Molly, when she was just a baby and she is now a whopping six years old! Dawn also is the one who took Paula and I to Maine for our senior trip in High School. So we go way back (ha!). 

Well, that's all I've got for now! I gotta go load myself up with more food tonight since they aren't letting me eat breakfast! If they try and keep me too long after, someone may end up with a black-eye, okay, or they may just get to see me cry because I'm so hungry. The two are comparable outcomes. Haha. Goodnight.

Wednesday, September 10, 2008

I'm Going Swimming Soon

Woohoo, Sharon finally called. I'm getting my tube out on Monday at 10:30 am. I have to be at the hospital at 8:30 and I can't have anything to eat after midnight. I'm going to die of starvation...seriously. I usually wake up around 8 in the morning and I.AM.STARVING. Then I eat again around 9:30 and then I have lunch at 11. We won't go into the schedule for the rest of the day. Everything I've read online says that the doctors usually pull the tube out in their offices, but apparently I can't do things like everyone else. I'm actually having to go to the OR for mine (I had a radiologist put mine in and not a gastroenterologist so that may be why). Hopefully it will just be an in and out type thing and I'll be able to go eat right after (they didn't put me under to put it in, so I seriously doubt they would to take it out). Oh well. The good news is that it is coming out finally and I'll be able to go swimming once the hole closes up! 

Just Waiting...

Quick Update:


We are waiting to hear from Sharon, one of Dr. Pou's nurses about when my appointment with the GI doctor to have my LAST tube removed will be. They were having trouble figuring out who the doctor was that put the PEG tube in and by the time they figured it out, everyone had left from the office. So, they are supposed to call this morning and schedule an appointment for me. So, I am just waiting to find out when it will be. Well, it's almost time for first lunch (yep, I eat a million times a day it seems like). I'll write more later. 

Monday, September 8, 2008

"Next Time We Evacuate I'm Bringing My XBox" - Warner

So Warner decided he didn't like getting stuck doing work around the house during our vacation. After the entertainment center was built and the room was painted, he proclaimed, "Next time we evacuate I'm bringing my xbox so I don't have to do all this again." I guess it's a good thing I got him to do a few things this time because it looks like I won't be able to do anything next time we are there (unless we "accidentally" forget the xbox). 


I had my appointment with Dr. Fields today and it was a good appointment, of course. All the nurses were amazed at how well I looked as was Dr. Fields (although he expresses things differently than all the nurses do). I got scoped, as usual, but Dr. Fields isn't so bad when he does it - it barely hurts, you just have to blow your nose for a little while after to get all the lubricating stuff out. He also said I was talking really well and he didn't make any comments about my weight (I'm still a few pounds down from when I finished treatment, but I haven't lost any since Mell weighed me two weeks ago - apparently I'm the only one on this planet that can eat out for lunch and dinner every day for a week and a half and NOT gain any weight). I also asked him about getting my feeding tube taken out because I haven't used it in a little over 3 weeks. He was amazed that I haven't used it at all and said to go ahead and have it pulled. So, after my appointment we immediately called Dr. Pou's office so she could get an appointment with the GI doctor set up, but they haven't called us back yet (Monday is her day in surgery, so I'm guessing she wanted to call Dr. Fields before she set up my appointment or she just wanted to wait until tomorrow to deal with it). So, I'm hoping the nurse calls tomorrow and we can get the ball rolling on this. 

That's all I've got for now. My parents are living it up in Yellowstone right now, and even though I'm not a big fan of Yellowstone, the Tetons are really close by (Lake Solitude anyone?), and it's not that long of a drive to Glacier (just the whole state of Montana pretty much) and I would definitely rather be in Glacier right now. 

Sunday, September 7, 2008

Blue Room...You Saw Me Standing Alone...

Ha, okay, sorry, no more singing made up lyrics to country songs. We are back in Gonzales. We made it back this evening and it really isn't as bad here as I was expecting. West Baton Rouge had some intense tree damage but for the most part, Gonzales just looks like places normally do after a hurricane...lots of branches down along with a few trees and there are some blue roofs as well, but not that many. I went to the grocery store and it was pretty bare so I had to pick and choose what I could to make some meals. I didn't buy too much though because we are watching Ike, and if we have to evacuate I don't want to have to mess with cleaning out the fridge before we go. The grocery store was pretty busy as well, when I pulled up there was a line outside (it had cleared up by the time I got to the door) and when I left there was a line that had formed again - they were only letting so many people in at a time. 

I looked at the pictures I posted of my tongue, and I realized why everyone was so confused by them...I took them with my computer and for some reason, the pictures reversed themselves. My flap is actually on the right side (but it looks like my left in the picture) and the scar is on my left arm (although it looks like my right). Does that clear things up a little? 

Tomorrow I have a doctor's appointment with Dr. Fields and I'm going to beg and cry to have my feeding tube taken out! I'll let you know how it goes. 

Okay, now some pictures of everything we did in Tulsa! 


Our blue bedroom...






The entertainment stand that Warner and Todd built

The entertainment stand and the messy living room. I had to take everything off the old gigantic entertainment stand so next trip up I will have to find somewhere to put everything. You can see Ruekie in the bottom right of the picture...



Jackson and Girlfriend!

Shauna and Todd, Jackson's parents if you couldn't see the resemblance. They are also the wonderful people that are keeping an eye on our house while we are gone and our cookout buddies when we are in town.


Jackson! This is after we promised him a cookie. 

Tuesday, September 2, 2008

Woo Pig Sooie...More Proof That I Actually Graduated!



On Sunday we went to the University of Arkansas after church. We ate lunch with a group of friends from Cabot that we haven't seen for a while. Then at the U of A we went and saw my name in the Senior Walk! Woohoo...here are some pictures!




These kids went to lunch with us 
and walked around campus after with us.



On campus



Me by my name in the walk!




Again by my name!


They spelled it right!

I Am Stealing Shauna and Todd's Internet



Lainie is the recipient of the "Best Double Take Award" on Sunday at church. We were all standing around talking to Chris and Marie and a few other people and Lainie walked in and just looked at us and walked on by. Marie made some sort of comment and Lainie gave a quick response and kept walking. THEN, she finally realized, after looking at us a few times, that she hadn't seen us in a long time and that was kind of a big deal. We got a lot of double takes on Sunday. It's great. People just say hi like it's no big deal and then it clicks and you get a really excited HI! It was really good to see everyone and we enjoyed getting to spend time catching up with you all! 

Warner has finished the entertainment center, with the help of Todd from down the street. It turned out really well and we will move it into the house tomorrow. Today Warner and I went to the aquarium because I was starting to fall asleep on the couch while we were watching Return of the King. So, that's about it, here are some pictures from our vacation so far. 

The boys working on the entertainment center!


The dogs joined in

Sharks at the aquarium


Jellyfish!


Me petting a shark, I also got to pet the stingrays

Baby Jellyfish



Stingrays and sharks!