End Day 2

We just got done seeing Stephanie for the final time today, she really is looking better every time we see her. The swelling continues to reduce. She should be allowed out of the SICU Thursday morning.I just hope the trach comes out shortly thereafter, or maybe even before. We heard this evening that she had a pediatric sized trach, the ICU Nurse wasn't sure whether that was a necessity or an election by Dr. Pou, I will ask her tomorrow if she comes by again. She got her first t-shirt today, form th nurse, unfortunately it's dookie brown and an XL. Unfortunately she was in a lot of pain this evening, but she is using more and more communication tools, she's even started using her legs to signify that she's hot. It's very frustrating for her and for us to not be able to communicate the way we all used to, she can't start writing and speech therapy soon enough, let me tell you. I am still amazed at how good she looks (as long as they keep her arm wrapped), and how much better she looks every time we see her. I hope and pray that she heals well, the pathology stays negative, and that she has learned to swallow (and maybe eat), and talk fairly well prior to starting radiation and regressing due to that. We are so lucky to have the people we have working on her, they have thus far shown themselves to be extremely competent and excellent people, not just excellent doctors. I know this would be much worse for all of us were it not for Dr. Pou's outstanding attitude and ability to take care of us and Stephanie.