Sunday, November 29, 2009

Update: One Month Later

It's been a while since I've updated, even longer than the month it's been since Stephanie did. And what a month it has been. After her last update Steph started complaining about the Taxol and significant numbness in her hands and feet (a common side effect of the chemo). The third week of her three week cycle her blood counts were down and she didn't recieve the Taxol, only the Erbitux and later two units of blood. The next week was an off week, towards the end of the week she began complaining about a sharp pain in her left arm and hand. On Monday when she saw the doctor we discussed this and he determined he would like to scan her and see if there was a reason for her pain. She had treatment that day as well since we were in the bulding. At the end of the week we traveled to O'Fallon IL to visit my family, surprise my sister as she was in a play, and celebrate my mom's 56th birthday. Unfortunately there was a reason for the pain that showed up on the scan. The Taxol/Erbitux combination was not being effective and the large tumor in her left lung (the only one that showed any activity a month before) was growing somewhat significantly. It has begun eroding the chest wall and is pressing on nerves in the let shoulder blade area, which is causing the pain in the arm and hand. He switched her to another new drug to see if it would be effective. She felt good in the beginning of the week, but again towards the end the pain became unbearable. When we saw the medical oncologist on Monday and told him about the pain he suggested we consult with the radiation oncologist and determine if the tumor could be radiated to more quickly relieve the pain in the shoulder. The RO decided that he could and Stephanie started her second round of radiation on Tuesday before Thanksgiving. She recieved two treatments before Thanksgiving and then we headed out to Texas for Stephanie's grandmother's 80th birthday. It was good to see her extended family and celebrate such a long life. Stephanie was of course the second center of attention at the party. Unfortunately all the traveling has pretty well done her in. She slept the entire day Thursday, except while we were actually at the party. We had to return to Gonzales on Friday so she could receive her next two radiation treatments today and tomorrow. She has slept all day today as well, she even missed the Razorback game and slept through all my hollering. Hopefully tomorrow she will get some energy back.

We are still planning on moving back to Tulsa. The date is currently set for traveling on December 18th, and staying in our house for Christmas. The MO is researching cancer centers for us and will make a recommendation, probably sending Stephanie to an academic center in order to participate in a clinical trial.

Grace and Peace

5 comments:

Cindy McLean said...

SO glad to hear from you all! What a rough month you have had. My prayers will be continued. How are the"boys"? My daughter is getting married in Tulsa in January. Hope you are feeling better soon. LSU sured whipped us! HUGS FROM ARKANSAS!

Diane said...

Hi Stephanie and Warner. I'm glad you're moving back to Tulsa. That's not quite Siloam Springs, but it's close and we like having you near us.

I'm so sorry you're going through all this suffering.... both of you. But I remember Stephanie saying something at the very beginning of all of this. It was something like.... "God must feel like I'm up to this, but I wish He would think I was up to something a little less." Now that was not exactly the quote. I went back in your blog looking for it tonight, but I couldn't find it. But I loved what you said then because you knew that God was with you, and of course we know He is still with you. If you remember the exact quote, I'd love to read it again.

I'm going to send this latest post out to our Prayer Partners. They keep you in their prayers and are always interested in how you're doing.
All is well because God is in this with you. He'll never leave you nor forsake you. We love you and we'll keep praying.

Diane (for Dale, too)

Anonymous said...

Thank you Warner for posting - people do wonder and worry and want to know how you all are doing. Well written Warner...I am sorry Steph has had to endure 2 TIRING trips in 10 days.....surely she will get some GOOD rest and be ready to say mean and ugly things to this tumor that just won't quit. Praying that the Radiation offers relief from pain and eradication of ugly lung tumor. Again we three in Illinois so enjoyed having the 4 of you here!!!!!! THANK YOU STEPH AND WARNER!!!!!!! OOps -left Gracie out by saying 3 - 4!!!!! Edgar certainly does not let Alpha Gracie bug him!!!!! Good puppy Edgar, and great dog Ruekie!!!!! Yall are welcome anytime - love yall sooooo much! Mom, MIL, sksb

shay said...

It is so disheartening to hear that the chemo did not do the trick! We will all be praying very hard that the new meds will work. Stay strong!

Anonymous said...

I've been following Stephanie's fight and have admired her for her humor in the face of adversity. While this latest news must be very discouraging I have no doubt that she will give it her best fight. My prayers are with you both.